It's been a LONG few days...

Hi everyone...

It's 4:48 on Wednesday morning and I am up... again... You all know Mike has been a horrible sleeper through all of this but Saturday night around 1 am the roller coaster really started... and it hasn't stopped yet.

Katie started with a stomach bug on Saturday afternoon and Mike picked it up Saturday night. I wish they would share the TV clicker and toys as well as they shared this stomach bug! Katie's came with a fever but Mike's temp didn't start going up until Sunday evening. Sunday night at 9:30 I found myself driving into MSKCC's Urgent Care because of his temp and the fact that he couldn't even hold water down anymore.

We were there all night and all day on Monday. They released us after giving him over 1 liter of fluid over the course of the 20 hours we were there and told us to come back Tuesday morning so we didn't have to stay overnight. We were there from 8AM to just about 1PM today. He was doing so much better at home this afternoon. He was playing and laughing... and then at 3AM it started again... the diapers needed to be changed and he got sick again. The pediatrician on call said that we can wait until 8 when the neuro-oncology team comes in to call and talk to them but we will probably have to go back and be seen today. I had assumed that would be the case, I am just glad he didn't tell us to get in there right now.

So, now I wait and hope and pray he doesn't get sick again and try to figure out how I can be at the hospital with Mike while being at Katie's school Passion Play that she is in this morning. I hate that part... I feel like in order to take the best care of Mike there are too many times that I have to ask Katie to sacrifice something. I felt like a horrible person on Monday when I was at the hospital with Mike and she had to go to the doctor but I couldn't take her. My mom took her and while it is amazing that my mom has been so great, I should be the one to take her to the doctor. I am the one that is supposed to be there when she is sick and I couldn't be there. I HATE that. I HATE that she is only 7 and is learning already that there are disappointments like that in life. I am still going to try to figure out how to get to her play but if I can't, Matt will be there. He will take tons of pictures and I will talk all about it with her. It won't be the same and it won't be the way I, or she wants it, but I really don't know what else to do.

Well, I am going to try to get an hour more of sleep so I can be up and ready to bring Mike to the hospital in the AM. I will update from there later.

Hope you are all well. Please pray that Mike feels better soon and that things settle down here for us soon!!

Love,
Chrissie