Thursday, November 20, 2008

Our latest update... week 4

***Update again... Mike's c-diff came back negative!! :) What a relief... it wouldn't have been serious but it would have been a pain again! I hated waking him in the middle of the night and he was so freaked with the gloves... YAY negative c-diff results!! LOL

**Update -- Mike's c-diff results are not back yet! :( ARGH!! Hopefully we'll get the results tomorrow!!

Hi everyone,

Well, week 4 of chemo is done... only 56 more weeks to go... we hope! We got to Sloan yesterday after a rough morning at home.

Mike hadn't really slept well at all Tuesday night, he was up 8 or 9 times so getting him up at 6:15 was a bit of a challenge since he seemed to be in the deepest sleep he had been in all night! And don't even get me started on waking Katie! She is a nightmare to wake up! That girl loves her sleep and when you have to wake her she is as cranky as can be. So, now it's 6:30 and I have 2 whining, cranky children on my hands and I am getting them both ready for the day ahead.

Thankfully both my Dad and my sister, E, were coming to Sloan with Mike & me yesterday. They were both here to talk to Katie as she was crying that she couldn't come with us and to tell her that E would be here when she got home from school. I have to now call my mom at work as we are leaving the hospital so she can go to Katie's class to tell her that we are on our way home. I can't even imagine how she must feel going to school on Wednesday mornings while Mike & I head off to Sloan knowing that there is a chance that he might have to stay overnight in case of an infection or some other issue. It has to be totally overwhelming and scary for her so I am trying to spend more one on one time with her but it is hard when Mike doesn't want anyone but me when he feels crappy.

And boy, does he feel crappy today. He is downright miserable! :( He is just lounging and cranky and seems uncomfortable. In fact, it isn't even 11 AM and he is up for a nap already! :( I don't know what it is, he is just not right today. And he woke up Tuesday morning with a runny nose and I can't give him any OTC meds other than Tylenol so I am hoping it doesn't turn into anything worse than a little cold.

To top it off, I am waiting for a call from Sloan b/c I had to give them a stool sample from his diaper yesterday. They called last night to tell me that the rapid c-diff test came back positive! :( I can't believe this freaking thing may be back! I really wish this kid could catch a break. They did say that the lab told them that there have been quite a few patients lately that the rapid test have come back positive and then the full culture comes back negative. I hope that is the case today with Mike! I will update on that when I get the call later today.

Anyway, his bloodwork came back screwy because of the cold... his white blood count was down and so were his platelets, neutrophyls and hemoglobin. Thankfully once his cold gets better those should all go back up. Probably not the hemoglobin though, but hopefully that has leveled off to where it is going to stay through the chemo protocol.

And speaking of the chemo protocol... just when it is becoming somewhat routine and the way it is for us now, we got the date for our MRI between the induction round and the 2nd round of chemo. January 13th is the day. The day we find out if this chemo protocol we are following is working, if it is getting rid of the tumor(s), if it is stunting the growth of the tumor(s), or if it is doing nothing and we have to change the medication we are using. I know I am not supposed to look that far forward, that I am supposed to take every day one day at a time but the date is in front of me. They wrote it on an appointment card in pen. I have put it on my calendar and I am worried about it already.

Well, I am going to start my laundry while he is napping so I can spend the rest of the day cuddling with him. I hope you are all doing well. Thank you all for your good thoughts and prayers... Please keep them coming!!



Kathryn said...

Your family is always in my prayers.

Danielle K said...

Maggie had C-diff, no big deal it just STINKS, literally, and its hard to get the medicine because no one on the pennisula has it.

Fella',Mommy,Girly,Chrissy,Christina,You Pick! said...

Again, I am praying for you guys as always!