I am going to make this short because I am exhausted and need to take care of Mike. We had week 6 of chemo today. First they drew blood when they accessed the port and we waited... and waited and were finally called in to see the Dr and NP. Well, the NP we love, Mary, was in the room and started by telling us (my BFF J and me) that if this were a week where he was supposed to get the carboplatin he wouldn't be getting his chemo this week b/c his numbers were so bad. (I added a list on the right side of the page of the normal ranges of lab levels so you can reference them whenever you read) His platelets were great at 258. But that was the only one that was good...his white blood count is 3.0, his ABS Neut is 0.3 and his HGB is 8.1. :( So... he is officially neurtropenic. They had to place an inflaport (I think that's what it was called) in the back of his left arm so that I (or in this case, J's aunt who is a nurse b/c Mommy is to chicken to do it) can inject a drug called Neupogen to help bring his counts up. We have to go back on Friday to get his bloods drawn again and since his HGB is so low if it gets to 8.0 they will have to do a transfusion. :( Also, I have to take his temperature 4 times a day and if it gets to 100.4 I have to call them and if it gets to 101 I have to bring him right in to Sloan. If he should wake up in the middle of the night with a high fever I have to bring him right to an ER. A lot of scary instructions but we will get through it and I am hoping and praying the Neupogen helps sooner rather than later!!
They did give him the Vincristine today though since that chemo drug isn't supposed to lower the levels. So, at least we are staying on schedule.
They also told me that they are going to refer him to the Make A Wish Foundation. I had always thought that the only kids who were referred to that were terminal kids but now any child that has a chronic health condition can be referred. We shall see what happens with that.
Well, that's all for now... a lot to take in and a lot to deal with. He was amazing again today and I am so glad J was able to come with us. It was so great to have him there.
I will try to update tomorrow on how Mike is doing! Please continue to keep Mike and our family in your prayers!
Love to you all,
Wednesday, December 3, 2008
Posted by Chrissie at 3:27 PM